people living with a rare or undiagnosed disease, their relatives, health professionals
Services
Information and support for people living with rare and orphan diseases, their families and healthcare professionals.
* To gather and share information on rare diseases and the issues surrounding them.
* To raise public and medical awareness of the realities of rare and orphan diseases.
* To advance knowledge of the various rare and orphan diseases by encouraging exchanges between patients and researchers.
Details on the service offer
Services are exclusively offered remotely.
Eligibility
people living with a rare or undiagnosed disease, their relatives, health professionals