Various services to support children living with a rare disease and their families.
* Support group.
* Financial assistance: medication, medical equipment, travel to hospitals, consultation with health professionals, etc.
* Exchange meetings and special activities.
* Resources on rare diseases.
Details on the service offer
Covid-19: Open. 7/10/2021
youth under 18 years old with a diagnosis of a rare or orphan disease and having medical follow-up for this condition, their family
Province of Québec
application for assistance: fill out the online form
medical certification of diagnosis, receipts for expenses